I’m writing on behalf of my 19 year old daughter Morgan, who became ill with Lyme disease and Pandas at the age of 15. She went from being a straight A student who loved to read and could finish a book per day, to having to leave school because of pain, extreme fatigue, and the fact that it would take her 10 minutes to read one page and then she wouldn’t be able to remember anything she read. She ended up missing two years of high school and for the past year, she’s been receiving tutoring at home, provided by the school system. If she continues with the tutoring through the summer, she is on track to being a Senior in the fall.
Thanks to Lyme, Morgan also has a form of Dysautonomia, Postural Orthostatic Tachycardia Syndrome, along with Gastroparesis and requires 2 liters of IV fluids daily. Even with medication and the fluids her heart rate is often over 130 bpm with shortness of breath, light headedness, and chest pain. She recently had a few weeks of feeling well while on IV Ceftriaxone, but unfortunately insurance has denied her more than 28 days. Her symptoms are quickly coming back since we can’t afford to self pay for the medication.
Before 2014 when this all began she had the typical teen dreams of finishing high school, going to dances, graduating, and then college. She wants some kind of writing career but her Biology teacher was encouraging her to explore a career in the Science field because she had a natural gift for it. The photo I’m sending is from when she was well. She’s getting a kiss from a wolf pup. She loves animals and chose having a “play date” with the pups at a nearby Conservation Center over a birthday party and as her gift that year.
– Morgan’s Mom